Other Multiple System Atrophy
Resources
MSA NJ is committed to providing resources to those affected by multiple system atrophy. We understand that this condition can be difficult to manage, both physically and emotionally, which is why we are here to offer support and guidance. As part of our commitment to serving the community, we partner with and recommend other organizations that may benefit individuals and families affected by MSA.
​
Other MSA Organizations:
​
Research and Support for MSA Patients & Care Partners
Excellent MSA information from the United Kingdom
US Department of Health and Human Services
Trusted information about Multiple System Atrophy
Raising awareness and money for MSA research
Fighting MSA: The Austin Crawford Story
Short films creating awareness about MSA
Support/Health Groups
MSA New Jersey offers a regional support group to those affected by MSA in the tri-state area . If you don’t live in the New Jersey area we recommend using the MSA Coalition’s list of local support groups. (See below)
​
​
Criteria for the diagnosis of MSA (2022)
List of local support groups in the US and the world
Safely share your data to help other MSA patients and MSA researchers
​
National Organization for Rare Disorders
​
Patient assistance program
​
Patient Advocacy platform empowers you to make a real difference
​
​
​
Clinical Trials and Databases
NINDS MSA Clinical Trial Information
Check out the official NIH database of MSA clinical trials
Michael J. Fox Foundation Clinical Trial Finder: MSA
Find MSA clinical trials
​
University of Pennsylvania Movement Disorder Center
Opportunities to participate in research
Mayo Clinic Multiple System Atrophy Trials
A list of MSA clinical trials at the Mayo Clinic
Database is currently closed to new respondents
MSA Research Updates
Multiple System Atrophy Research Updates
Up to date results of MSA research
Hospice and Caregiving
Home Care & Hospice Association of New Jersey
Advocacy for those considering or in hospice care
​
National Hospice and Palliative Care Organization
Make informed decisions about care and services
​
Caregiver Action Network – Caring for Rare Disease Caregivers
Caring for rare disease caregivers
Brain Donation
Helping loved ones donate a family members brain
These medical providers and resources have not paid for advertising, nor does MSA NJ, Inc. officially endorse them. This compilation is based on the sharing of resources among MSA patients and other interested parties in this region.