About MSA NJ
MSA NJ is focus on its core mission of supporting those affected by multiple system atrophy (MSA in New Jersey, the larger tri-state area, and beyond. The majority of organization funds are spent addressing our goals to provide education, support, awareness, advocacy, and MSA research contributions.
MSA NJ is operated solely by volunteers, having no paid staff.
MSA NJ is a registered non-profit corporation in the state of New Jersey.
MSA NJ is a federally recognized 501(c)(3) public charity. Contributions to MSA NJ are deductible under 170 of the IRS Code. Further, MSA NJ is qualified to receive tax deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code.
Our Story
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MSA NJ was founded by the Roemer siblings to help other people facing the journey they faced in their mom’s battle with MSA.
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In 2004, their mother, Dolores Roemer, developed symptoms that appeared similar to those common to Parkinson's Disease. She was diagnosed with another neurological disorder. Suspecting misdiagnosis, they began the journey to learn the cause of their once vibrant mother’s rapid decline.
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Once correctly diagnosed with multiple system atrophy (MSA), they faced a medical system that was ill-equipped to treat her. Many members of the medical community had never heard of MSA. Records and MSA information were constant companions, in a folder on every outing in case of an emergency. Insurance would limit treatment due to insufficient progress according to normal standards, although clearly treatment was helping. Professionals advised them to ‘put Mom in a home’ (they never did). Hungry for information, they surfed the Internet, searched for answers, and questioned relentlessly.
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Ultimately, the Roemer's found a team of compassionate doctors and therapists who did their best to treat the symptoms of a disease that would not quit. They were also fortunate enough to find caregivers that loved their mom like one of their own, giving them peace of mind when unable to be with her themselves.
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Finally, on Mother’s Day of 2009, she lost her battle to MSA. And now, the war is on, and the Roemer siblings and the team at MSA NJ intend to fight the enemy that took our mother in our quest to Conquer MSA.
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We believe in a world where no one has to face MSA alone.
Our Mission
To serve and support the MSA community with dignity and respect, meeting multiple needs of this community.
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MSA NJ is a non-profit organization formed to provide support for patients, families, caregivers, medical personnel, and any other affected persons or interested parties in the tri-state area impacted by Multiple System Atrophy.
Additionally, our goals include providing education about this disease and related matters, raising public awareness, participating in global MSA advocacy groups and activities, and supporting research for treatment and a cure. Fundraising efforts are to support realization of these goals.
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Our Vision
MSA NJ – A voice for MSA and a resource for its community, envisioning a world in which no one suffers the ravages of this debilitating disease.
MSA NJ will remain abreast of progress in MSA treatment and research, be active participants in advocacy groups and activities, and listen to the MSA NJ community in order to respond to their needs accordingly, evolving as the current culture and resources mandate and permit.
MSA NJ will do the utmost to serve as an enduring voice for those who may not be able to be their own, and as a resource for patients and caregivers to obtain much needed support. MSA NJ strives to be a trusted, respected non-profit entity that serves the MSA community first and foremost through providing support, education, advocacy, activities, and resources for both the afflicted as well as treating medical practitioners, and through raising awareness and funds to support research and services. MSA NJ will work to become a well-known entity, creating awareness about MSA, and associated with making strides in the fight against this debilitating disease.
Organization Structure & Financials
A volunteer operated non-profit, tax exempt organization with a focus on meeting its mission.
MSA NJ is a registered non-profit corporation in the state of New Jersey.
MSA NJ is a federally recognized 501(c)(3) public charity. Contributions to MSA NJ are deductible under 170 of the IRS Code. Further, MSA NJ is qualified to receive tax deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code.
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MSA NJ is operated solely by volunteers, having no paid staff. The majority of organization funds are spent addressing our goals to provide education, support, awareness, advocacy, and research contributions.
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Value Statement
Compassion, respect, support, and quality care for everyone.
MSA NJ values integrity, honor, and professionalism. All people deserve to be treated with respect, compassion, and dignity. All patients have the right to quality care and the opportunity to live their lives to the fullest.
Ethics Statement
Professionalism based on respect, honesty and integrity.
MSA NJ is committed to operating in a professional manner, treating all constituents, donors, volunteers, and partners with dignity and respect without bias, behaving ethically and responsibly toward fulfilling our mission.
