2016 MSA NJ Conference Videos

Disclaimer:

MSA NJ is pleased to provide this valuable information as presented by professionals in their fields. However, it is not intended to replace your medical treatment. Please speak to your own physicians about any information you gained in viewing these presentations.

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2016 MSA NJ Conference Program

 

Handouts

Hospice Handout

GLOMSAR Registration

 

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Donations

MSA NJ is a completely volunteer organization. We rely on donations to support our efforts, such as this conference. If you would like to support our work, please consider a donation.  Any amount, no matter how small helps. Thank you.

Click here to make a donation online.

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Dr. Amy Colcher

Director

Movement Disorders Center

Cooper Medical Center

Camden, New Jersey

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Dr. Roger Kurlan

Specialist

Movement Disorders

Overlook Medical Center

Summit, New Jersey

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Presentation Summary

 

An Overview – Symptoms, Diagnosis,& Management

Featured Speakers   

Amy Colcher, MD – Director, Movement Disorders 
Cooper University Health Care

Dr. Colcher will address clinical features, diagnosis, and the functional changes associated with MSA.

Roger Kurlan, MD – Director, Movement Disorders
Atlantic Neuroscience Institute

Dr. Kurlan will speak about general principles and the many facets of disease management.

 

Practical Methods to Improve Everyday Life

Featured Presenter

Joellyn Fox, DPT - Lead Therapist     

Dan Aaron Parkinson's Rehab Center

University of Pennsylvania Hospital              

Dr. Fox will present practical techniques for living with the physical limitations of this disease as well as recommendations for finding appropriate therapy.

 

About the Global MSA Registry (GLOMSAR)

Featured Presenter

Lucy Norcliffe-Kaufmann, Ph.D

Research Assistant Professor, Department of Neurology

Research Assistant Professor, Department of Neuroscience and Physiology             

Neuroscience Institute

New York University School of Medicine, NYU Langone Medical Center    

Dr. Norcliffe-Kaufmann will speak about why we need a registry, how the registry can benefit people with MSA, and plans for the future of GLOMSAR.

 

Support Care and Planning Panel: A Pragmatic & Personal Discussion of Life with MSA

Moderator:

Ronald Roemer – MSA NJ

 

Panelists:

Patricia Kaba-Ambrose – Hospice Nurse 

Holy Redeemer Hospice – Ocean County Clinical Supervisor

New Jersey Hospice and Palliative Care Organization Partner

Ms. Kaba-Ambrose will discuss considerations in arranging hospice care, and explain what is provided. She will also speak about general home care services.

 

Cyndi Roemer & Kym Roemer – Patient Caregivers& MSA NJ Co-founders

Strategies for long-term home care, and practical advice for living with MSA, including keeping the joy in daily life is shared from a family who travelled this path.

 

Larry Kellerman – Patient Caregiver & MSA Coalition Board of Directors

Mr. Kellerman will share his story as a caregiver and MSA advocate.

 

MSA Business: Updates on the Work of MSA Charities

Larry Kellerman – MSA Coalition Board of Directors

Dr. Kellerman will report on the progress of the MSA Coalition efforts such as research grants, awareness activities, and the upcoming national conference in the Fall.

 

Cyndi Roemer – MSA NJ President

Dr. Roemer will provide an overview of MSA NJ services and progress since its inception several years ago.

 

Patient & Caregiver Open Discussion/Support Group

Attendees will be giving the opportunity to debrief and share personal experiences.

 

Exhibits

A variety of support information and staff will be available, from speech and swallowing therapies to advancements in urinary issues, and resources for support groups and relevant support services, clinical trials, and businesses that can help with daily living needs. 

Holy Redeemer Hospice & Home Care – Patricia Kaba-Ambrose
Lundbeck – Katharine Moser & Gary Espardinez
Shore Rehabilitation Institute – Joanne Smith
Vesiflo, Inc. – Terence Moore

And many thanks to the organizations and companies that provided informational brochures.

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