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MSA NJ
Non profit serving the tri-state area, for anyone dealing with MSA or related brain diseases.
P.O. Box 773 Howell, NJ 07731
www.msanj.org | www.facebook.com/NJMSA
Contact: Cynthia Roemer
MSA NJ Facebook Closed Support Group
 
 
New Jersey – Cape May
For caregivers dealing with Atypical Parkinson+ disorders
Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center)
Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pm
Facilitator: Bonnie Kratzer 609-463-4043 jkratzer@caperegional.com
 
 
New Jersey – Moorestown (5 minutes from Philly and 30 from Trenton)
No Meeting Phone Support Only
Contact: Rachel Zambrano 856-316-6742 Rachelzambrano@comcast.net
 
 
Summit
For anyone affected by MSA or related brain diseases
Location: Overlook Medical Center, Conference Room #1, 99 Beauvoir Ave Summit, NJ 07901
Meeting Time: 2nd Saturday of every month , 11:00 am-1:30 pm. Remote access in development.
Facilitator: Cyndi Roemer 732-903-8517 cynthia.roemer@msanj.org
 
 
New York – New York City Metro Area
For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: North Shore University Hospital, Tower Conference Rooms, First Floor, 300 Community Drive, Manhasset, NY 11030
Meeting Time(s): 3rd Saturday Quarterly from 1:30pm – 3:30pm
Facilitators: Kara Holisher 516-932-1696 kbhx2@optonline.net
Harriet Feiner 718-224-4654 hfeiner@nyc.rr.com
 
 
New York – Syracuse/Chittenango
For Anyone with Parkinson or SDS/MSA
Location: Jim Marshall Farm Foundations Facility North Chittenango
Directions to the farm can be found at http://www.jmffinc.org/services
Meeting times: 4th Tuesday of each month from 12:30PM-2:30PM
Contact: Wayne Hamilton 315-687-9014
 
 
Pennsylvania – Philadelphia
For persons with movement disorders
Location: Pennsylvania Hospital Movement Disorder Center, 330 S. 9th Street, 2nd floor conference room. Philadelphia, PA 19107
Meeting Time: 3th Saturday of each month from 1:00pm to 2pm
Facilitator: Christin Salemno 215-829-2347 christin.salemno@uphs.upenn.edu
 

Pennsylvania – Youngwood
For persons with movement disorder
Location: Honeysuckle Haven 621 South 5th Street, Youngwood, PA
Meeting Time: 3rd Thursday of each month from 6-8pm
Facilitator: Rose Buric 724-691-7363 rjburic@gmail.com
Yahoo Online Group
 

MSA NJ Support Group Facebook
Facebook

MSA Buddies Facebook
 
 
Caregivers Only Facebook
 
 
Larry Kellerman – Caregiver Representative, MSA Coalition BoD Facebook
 
Patients Only Facebook
 
 
MSA Facebook
 
 
Mid Atlantic/Tri-State Facebook
Online Cure PSP Support Group for MSA
CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers and family members affected by PSP, CBD, MSA or related brain diseases by using their computer, telephone (charges may be incurred) or both. A computer is not required since meeting participation is always available by telephone. Below is a list of support group meetings. For more information about the meetings, please contact the Facilitator. If you have other questions, please email info@curepsp.org or go to www.curepsp.org
 
 
People with MSA Cure PSP Support Group for MSA
Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/759482131
Meeting Tel: 312-878-0211; Access Code: 349-078-984
Facilitator: Gary Rose, 360-200-5230, gary.rose.wa@gmail.com
 
 
Carepartners of People with MSA Cure PSP Support Group for MSA
Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: 773-945-1011; Access Code: 605-218-650
Facilitator: Carol Langer, 781-608-4680, carollanger@comcast.net
 
 
Carepartners Who Are Grieving
Meeting Time(s): 2nd Wednesday of each month from 8:00pm – 9:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/389312320
Meeting Tel: 470-200-0302; Access Code: 213-853-650
Facilitator: Richard Cheu, 732-245-3173, ac614@verizon.net
 

Michael J. Fox Foundation
Website

National Parkinson Foundation
Website

Parkinson’s Disease Foundation
Website

Southeastern Pennsylvania – Monthly Bereavement Support Group Hospice Support
Third Tuesday of each month from 6:30 p.m. to 8:30 p.m.
It is said that we must grieve our losses in order to recover and experience emotional healing. This group offers a safe place in which to do the hard work of grieving in a supportive environment. Any adult who has experienced the death of a loved one is welcome. Both educational and emotional support is offered during your time of grief and mourning.
Cost: Free- to register call 1-800-818-4747 or visit our Classes and Events page 
Location: Holy Redeemer Hospital, Conference Room 4/5, 1648 Huntingdon Pike, Meadowbrook, PA 19046

New Jersey – Weekly Understanding Grief Workshop  – Swainton – Hospice Support
Thursdays from 6 p.m. to 8 p.m.
This group is professionally facilitated by Holy Redeemer and designed to offer an atmosphere where individuals can freely express their feelings about losing someone they love and receive support from peers.
Cost: Free- registration is not required. For more information, call Nicole O’Neill at 609-463-6029
Location: Saint Maximilian Kolbe, 200 Tuckahoe Road, Marmora, NJ 08223

New Jersey Hospice and Palliative Care Organization